Resources
Commonly served diagnoses and symptoms with hyperlinked resources for the major diagnoses/symptoms
Academic underachievement
- LD Online – Guide to Learning Disabilities and ADHD
- Thinking Differently: An Inspiring Guide for Parents of Children with Learning Disabilities (Book)
Attention deficit/hyperactivity disorder (ADHD)
- Center for Disease Control and Prevention (CDC) – ADHD
- National Institute of Mental Health – ADHD
- Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD)
- Children’s Hospital of Philadelphia Center for Management of ADHD Resources
- Driven to Distraction (Book)
- Taking Charge of ADHD (Book)
Anxiety disorders (generalized anxiety, social phobia, panic attacks, acute stress disorder, simple phobia, post-traumatic stress disorder, adjustment disorder, obsessive compulsive disorder, separation anxiety disorder)
- National Institute of Mental Health – Anxiety Disorders
- CDC – Anxiety, Depression, and Children’s Mental Health
- The Anxiety and Depression Association of America
- The Child Anxiety Network
- Face Your Fears (Book)
- What to Do When You Worry Too Much (Book)
- If your Adolescent has an Anxiety Disorder (Book)
Autism spectrum disorder
- CDC – ASD
- National Institute of Mental Health – ASD
- National Autism Center
- Autism Speaks Toolkits
- Autism Speaks Resources
- First 100 days kit
- Parent Guide to Autism
- Improving Sleep in Autism
- Toilet Training and Autism
- Visual Supports and Autism
- Association for Science in Autism Treatment
- UF Center for Autism and Related Disorders Resources
- SSI Disability
- Wright’s Law
- Visual Strategies for Improving Communication (Book)
- A Practical Guide to Autism (Book)
- Steps to Independence (Book)
Brain Injury
- CDC – Traumatic Brain Injury and Concussion
- National Institute of Neurological Disorders and Stroke – Traumatic Brain Injury
- Brain Injury Association of America
- Brain Injury Association of Florida
- Brain Trauma Foundation
Bullying
Cerebral palsy
- CDC – Cerebral Palsy
- National Institute of Neurological Disorders and Stroke – Cerebral Palsy
- CP Daily Living
- Cure CP
- Reaching for the Stars Foundation
- United Cerebral Palsy
Communication/speech/language disorders
- CDC – Language and Speech Disorders in Children
- National Institute of Deafness and Other Communication Disorders
- American Speech-Language-Hearing Association (ASHA) – Speech and Language Disorders
- Child Neurology Foundation – Language Disorders
Conduct disorder
- CDC – Behavior or Conduct Problems in Children
- Johns Hopkins Medicine – Conduct Disorder in Children
- American Academy of Child and Adolescent Psychiatry – Conduct Disorder
Depressive disorders (major depressive disorder, bipolar disorder, dysthymia, adjustment disorder, bereavement)
- National Institute of Mental Health – Depression
- National Institute of Mental Health – Bipolar Disorder
- Teen Depression
- Suicide Prevention
- CDC – Anxiety, Depression, and Children’s Mental Health
- The Anxiety and Depression Association of America
- Beyond the Blues (Book)
- What to Do When You Grumble Too Much (Book)
Developmental disorders
- CDC – Developmental Disabilities
- CDC – Facts about Developmental Disabilities
- National Institute of Child Health and Human Development – Intellectual and Developmental Disabilities
- Administration for Child and Families – Early Childhood Development
- American Academy of Pediatrics
- American Association on Intellectual and Developmental Disabilities
- Insure Kids Now
Down syndrome
- CDC – Down Syndrome
- Global Down Syndrome Foundation
- National Association for Down Syndrome
- National Down Syndrome Society
- Down Syndrome Foundation of Florida
Dyslexia
- CDC – Learning Disorders in Children
- National Institute of Child Health and Human Development – Reading Disorders
- ASHA – Disorders of Reading and Writing
- LD Online – Guide to Learning Disabilities and ADHD
- Thinking Differently: An Inspiring Guide for Parents of Children with Learning Disabilities (Book)
Encephalopathy
- LD Online – Guide to Learning Disabilities aNational Institute of Neurological Disorders and Stroke – Encephalopathy
Encopresis/enuresis
- National Association for Continence – Pediatric Bedwetting
- American Academy of Child and Adolescent Psychiatry – Bedwetting
Epilepsy (seizure disorder)
- CDC – Epilepsy
- National Institute of Neurological Disorders and Stroke – Epilepsy
- Epilepsy Foundation
- Intractable Childhood Epilepsy Alliance
Feeding disorders
Fetal alcohol syndrome (FAS) and related disorders
Genetic disorders
Intellectual disability
- National Institute of Child Health and Human Development – Intellectual Developmental Disabilities
- American Association on Intellectual and Developmental Disabilities
- The Arc Jacksonville
Learning disorders
- CDC – Learning Disorders in Children
- National Institute of Child Health and Human Development – Reading Disorders
- ASHA – Disorders of Reading and Writing
- LD Online – Guide to Learning Disabilities and ADHD
- Thinking Differently: An Inspiring Guide for Parents of Children with Learning Disabilities (Book)
Neurological disorders
Oppositional defiant disorder
- CDC – Behavior or Conduct Problems in Children
- American Academy of Child and Adolescent Psychiatry – Oppositional Defiant Disorder
- American Academy of Child and Adolescent Psychiatry ODD Resource Guide
- Your Defiant Child (Book)
Pica
Post-traumatic stress disorder
- CDC – PTSD
- National Institute of Mental Health – PTSD
- Anxiety and Depression Association of America – PTSD
- When Someone You Love Suffers from Posttraumatic Stress (book)
Psychiatric disorders
Reactive attachment disorders
Self-Injurious Behaviors
Sleep disorders
Speech/language disorders (expressive, receptive, mixed expressive-receptive)
- CDC – Language and Speech Disorders in Children
- National Institute of Deafness and Other Communication Disorders
- American Speech-Language-Hearing Association (ASHA) – Speech and Language Disorders
- Child Neurology Foundation – Language Disorders
Stereotypic movement disorder
Suicidal thoughts or gestures
- CDC – Suicide Prevention
- National Institute of Mental Health – Suicide Prevention
- Suicide Prevention Lifeline – 1-800-273-8255
- Suicide Prevention Resource Center
Tantrums
Tic disorders (Tourette’s disorder, chronic motor or vocal tics, transient tic disorder)
Evidence-based practices
- Evidence-based practice is “the conscientious, explicit and judicious use of current best evidence in making decisions about the care of the individual patient. It means integrating individual clinical expertise with the best available external clinical evidence from systematic research.” (Sackett D, 1996). At Keystone, we use this model to inform clinical decision making. Clinical expertise, current available research, and patient preferences all play a role in the treatment decisions that are made on a day-to-day basis.
- We want to help families stay aware of interventions that are evidence-based and have strong scientific research demonstrating their efficacy, while having an understanding of interventions that lack such evidence
Community resources
- Wrightslaw
- Parents, educators, advocates and attorneys come to Wrightslaw for accurate, reliable information about special education law, education law and advocacy for children with disabilities.
- How to Apply for Disability Benefits
- The Federal Social Security Administration (SSA) offers income-based support to families of children with disabilities.
- Best Colleges Guide for Students with Disabilities
- A college guide for disabled students
- American Foundation for Suicide Prevention – North Florida Chapter
- Grassroots work that focuses on eliminating the loss of life from suicide by delivering innovative prevention programs, educating the public about risk factors and warning signs, raising funds for suicide research and programs and reaching out to those individuals who have lost someone to suicide
- Heal Foundation
- A local nonprofit organization in northeast Florida that does outreach by providing educational programs and camps tailored to the needs of the local autism community and awards funds to support grants, provide classroom enhancements, conduct educational seminars and host fun recreational and social events for families.
- March of Dimes
- Promotes healthy pregnancies and babies and works to prevent premature birth and birth defects; educates moms and supports families in need
- Down Syndrome Association of Jacksonville
- A nonprofit organization committed to helping people with Down syndrome achieve their full potential and to helping create a community that is educated, supportive and inclusive of individuals with Down syndrome
- Kate Amato Foundation
- A local foundation dedicated to finding safer, smarter and more effective treatments for children with cancer. Their mission is to fund innovative pediatric cancer research that accelerates the pace of progress and saves young lives.
Emergency resources
- Mental Health Resource Center
- MHRC provides 24-hour emergency services; inpatient psychiatric services for children, adolescents and adults; and numerous outpatient services.
- National Suicide Prevention Lifeline
- 1-800-273-8255 (available 24 hours every day)
- Wolfson Children’s Hospital at Baptist Downtown
- Wolfson Children’s hospital provides a range of inpatient services for adults, children and adolescents requiring hospital-based care. Their multidisciplinary team includes psychiatrists, psychiatric nurses, recreational therapists, social workers and mental health technicians.